First Nations communities and individuals living in BC receive public health and primary care through programs and services from both the FNHA and the Provincial health care system. Data are captured and created through both systems and a systematic and collaborative approach is required in order to make sure that the information is collected, analyzed and used in such a way that it is in the best interests of First Nations individuals and communities in BC
Data and information management is a foundational component of BC First Nations health governance and government. It is an important tool for supporting informed and strategic decision making with regard to the delivery and transformation of health and wellness programs and services for First Nations in BC.
One of the actions items in the Transformative Change Accord: Tripartite First Nations Health Plan is to improve the collection, use and sharing of First Nations health data in order to:
• Increase First Nations involvement in decision-making concerning their data and services and develop the capacity of First Nations in the area of health information governance.
• Facilitate access to accurate, timely, reliable health information for First Nations to inform decision-making and use health data to improve the quality and effectiveness of health programming
• Facilitate and support principles of First Nations health information governance. "First Nations Health Information Governance" is a component of First Nations Health Governance and refers to a structure, process and protocols by which First Nations in BC have access to First Nations data and are influentially involved in decision-making regarding the culturally appropriate and respectful collection, use, disclosure and stewardship of that information in recognition of the principle that such information is integral to First Nations policy, funding and health outcomes. This is a tool that has been created in the BC context to help embody the spirit of the OCAP principles within the surveillance systems, recognizing that it is not feasible or practical for First Nations to own or house the data sources relevant to public health information at this time.
The Tripartite Data Quality and Sharing Agreement (TDQSA) is an agreement signed by Tripartite partners in April 2010. It aims to improve the quality and availability of First Nations data through the appropriate use of the First Nations Client File (FNCF) to monitor health status and the performance of health programs.
The TDQSA commits the partners to:
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