First Nations health information governance refers to the structure, process and protocols by which First Nations in BC have access to First Nations data. 

It recognizes that First Nations in BC are influential and involved in decision-making regarding the culturally appropriate and respectful collection, use, disclosure and stewardship of that information. It also recognizes the principle that that information is integral to First Nations policy, funding and health outcomes.

First Nations Data Governance Discussion Sheet (fact sheet) – Research Ethics • Wellness Indicators • Identity Management

How Health Information Is Collected (fact sheet) – How the FNHA collects health information for two of its surveys, the Regional Health Survey and the Regional Early Childhood, Education, and Employment Survey

First Nation Clie​nt File​ (fact sheet) – What is the First Nations Client File (FNCF), what does the FNCF do and how is it being used.

Regional Data Gover​​nance Forums

The FNHA held a series of data governance forums in 2016 ​to help shape how we measure wellness indicators, use identity management and develop research ethics at the FNHA.

• Introduction (full presentation)
• Appreciative Inquiry and Population Health: Measuring First Nations Wellbeing • Wellness Indicators (presentations) – Presenters: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council Member, and Rebecca Lee, Wellness Outcomes Evaluation Specialist, Research, Knowledge Exchange, and Evaluation
• Backdrop for Development of First Nations Peoples' Data Governance and Health Indicators (infographic • full presentation) – Presenter: Jeff Reading, PhD, FNHA Chair in Heart Health and Wellness at St. Paul's Hospital and Professor, Simon Fraser University
• Data Governance Stories (full presentation) – Presenter: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council Member
• Regional Data Governance Forums (infographic) – Presenters: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council Member, and Mark Matthew, Manager, Engagement and Coordination, FNHA
• Reporting Reform: BC First Nations Data Governance Initiative (infographic • full presentation • Data Collection And Reporting Standards (placemat) – Presenter: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council
• Research Ethics Framework: Draft (infographic) • Ethics (infographic) • full presentation • Increasing Safety, Security, Support and Protection (placemat): Presenters: Meghann Brinoni, Manager, and Naseam Ahmadi, Senior Project Coordinator, Research, Knowledge Exchange, and Evaluation
• Client Service Profile Custodianship (infographic • placemat) • Identifying First Nations Citizens in the FNHA Environment (full presentation): Presenters: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council Member and Joseph Mendez, Vice President, Innovation and Information Management Services, Chief Information Office, FNHA
• Closing Remarks (infographic) • Good Governance, Good Data (full presentation): Presenter: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council Member