First Nations health information governance refers to the structure, process and protocols by which First Nations in BC have access to First Nations data.
It recognizes that First Nations in BC are influential and involved in decision-making regarding the culturally appropriate and respectful collection, use, disclosure and stewardship of that information. It also recognizes the principle that that information is integral to First Nations policy, funding and health outcomes.
The FNHA held a series of data governance forums in 2016 to help shape how we measure wellness indicators, use identity management and develop research ethics at the FNHA.
FNHA Research and Knowledge Exchange