Data Governance

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​​​​First Nations Heal​​th Governance • Regional Data Gover​​nance Forums

​​​​​​​First Nations Heal​​th Governance

First Nations health information governance refers to the structure, process and protocols by which First Nations in BC have access to First Nations data. 

It recognizes that First Nations in BC are influential and involved in decision-making regarding the culturally appropriate and respectful collection, use, disclosure and stewardship of that information. It also recognizes the principle that that information is integral to First Nations policy, funding and health outcomes.

Regional Data Gover​​nance Forums

The FNHA held a series of data governance forums in 2016 ​to help shape how we measure wellness indicators, use identity management and develop research ethics at the FNHA.

  • Introduction (full presentation)
  • Appreciative Inquiry and Population Health: Measuring First Nations WellbeingWellness Indicators (presentations) – Presenters: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council Member, and Rebecca Lee, Wellness Outcomes Evaluation Specialist, Research, Knowledge Exchange, and Evaluation
  • Backdrop for Development of First Nations Peoples' Data Governance and Health Indicators (infographicfull presentation) – Presenter: Jeff Reading, PhD, FNHA Chair in Heart Health and Wellness at St. Paul's Hospital and Professor, Simon Fraser University
  • Data Governance Stories (full presentation) – Presenter: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council Member
  • Regional Data Governance Forums (infographic) – Presenters: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council Member, and Mark Matthew, Manager, Engagement and Coordination, FNHA
  • Reporting Reform: BC First Nations Data Governance Initiative (infographicfull presentationData Collection And Reporting Standards (placemat) – Presenter: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council
  • Research Ethics Framework: Draft (infographic) • Ethics (infographic) • full presentation Increasing Safety, Security, Support and Protection (placemat): Presenters: Meghann Brinoni, Manager, and Naseam Ahmadi, Senior Project Coordinator, Research, Knowledge Exchange, and Evaluation
  • Client Service Profile Custodianship (infographicplacemat) • Identifying First Nations Citizens in the FNHA Environment (full presentation): Presenters: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council Member and Joseph Mendez, Vice President, Innovation and Information Management Services, Chief Information Office, FNHA
  • Closing Remarks (infographic) • Good Governance, Good Data (full presentation): Presenter: Gwen Phillips, Director, Governance Transition, Ktunaxa Nation and First Nations Health Council Member

 Contact Us

​FNHA R​​esearc​​​h and Knowledge Ex​change

Email: rke@fnha.ca