First Nations health information governance refers to the structure, process and protocols by which First Nations in BC have access to First Nations data.
It recognizes that First Nations in BC are influential and involved in decision-making regarding the culturally appropriate and respectful collection, use, disclosure and stewardship of that information. It also recognizes the principle that that information is integral to First Nations policy, funding and health outcomes.
First Nations Data Governance Discussion Sheet (fact sheet) – Research Ethics • Wellness Indicators • Identity Management
How Health Information Is Collected (fact sheet) – How the FNHA collects health information for two of its surveys, the Regional Health Survey and the Regional Early Childhood, Education, and Employment Survey
First Nation Client File (fact sheet) – What is the First Nations Client File (FNCF), what does the FNCF do
and how is it being used.
The FNHA held a series of data governance forums in 2016 to help shape how we measure wellness indicators, use identity management and develop research ethics at the FNHA.
FNHA Research and Knowledge Exchange